We created and coordinated the Tinnitus Research Group (Hospital das Clinicas, University of Sao Paulo School of Medicine). It was a pioneering work in Brazil and a real life lesson, much richer than any book or scientific article. When we realize and understand the suffering that tinnitus can provoke on patients' lives, we rose our first "flag": it was forbidden to say (and think!) phrases like "there is nothing that can be done", "you have to learn to live with it" or "you won’t die because of it, but you will die with it". The Tinnitus Research Group was composed of a multidisciplinary team of otolaryngologists, audiologists, psychologists, dentists and physiotherapists - most volunteers, all engaged by our "great cause".
We created and coordinated the pioneer Support Group for People with Tinnitus (GAPZ, in Portuguese) to function in parallel to individual care in Tinnitus Research Group. The “shy” GAPZ emerged as a "backyard experience" in the waiting room of my office. They were so productive meetings, that it grew very rapidly.
In 2001, GAPZ was taken into the Hospital das Clinicas. We made monthly meetings open to the public, bringing together professionals and patients who needed extra support, in addition to what an individual meeting could offer. The first part of the meeting consisted of a class taught by a specialist in the multidisciplinary team (otolaryngologist, audiologist, physiotherapist, dentist or psychologist). In the second part, the participants shared with each other their experiences and information.
In 2004, thanks to the goodwill of otolaryngologists who worked voluntarily, we expanded our actions and philosophy of thinking, creating regional GAPZ in 8 cities: São Paulo, Campinas, São José do Rio Preto, Brasilia, Salvador, Curitiba, Rio de Janeiro and São Luís do Maranhão.
For us, the team, it was an immense satisfaction doing meetings ... we felt that we could really help a lot, only providing information that most ignored so far! For the participants, it was also of great help, generating various statements and testimonies that have been put in the book "Who Said That Tinnitus Cannot Be Cured?". Some of them are at http://www.institutoganzsanchez.com.br/tt.php?testimonials=72
We launched the book: "Who Said That Tinnitus Cannot Be Cured?", our first independent production. This provocative title was intended to stimulate reflection: if cancer (which is a progressive and fatal disease) already have cases of total remission, why tinnitus (which is not progressive or fatal) would not have, either? Launched in 2006, the book sold 6,000 copies until 2011, only word-of-mouth and during our lectures. Readers usually compliment the clear and didactic way of transmitting information and the testimonies of remission through many ways of treatment, showing that each one has his own way to go forward. Further information can be obtained by (+5511) 3021-5251 or [email protected]
We created and coordinated the celebration of the National Day of Tinnitus Awareness, which is November 11th (Support: Otorhinolaryngology Foundation). Since 2006, each year had a different celebration, such as the walks in Ibirapuera Park, Villa-Lobos Park, which brought together children, adults and seniors "wearing the same shirt." Some editions of this event were also celebrated in other cities.
Celebration of the National Day of Tinnitus Awareness in Sao Paulo
Celebration of the National Day of Tinnitus Awareness in Curitiba
Celebration of the National Day of Tinnitus Awareness in Salvador
Celebration of the National Day of Tinnitus Awareness in Brasilia
Celebration of the National Day of Awareness of Tinnitus in Campinas
Celebration of the National Day of Tinnitus Awareness in Rio de Janeiro
After attending the 1st Meeting of the Tinnitus Research Initiative (TRI) in Regensburg, Germany, in 2006, we were invited in 2007 by Matteo de Nora and Berthold Langguth, to assume the leadership of the working group "Somatosensory Tinnitus and Modulation Factors". It was a big opportunity for meeting high-quality researchers and to boost the international dissemination of our own work. The TRI assembled the best tinnitus researches from worldwide to develop research on the many different aspects of tinnitus. since 2010, Tinnitus Research Initiative became a Foundation. See more about the history of this institution at http://www.tinnitusresearch.org
We won a very interesting gift: the theatre play called "My tinnitus disappeared", which was created by Mrs Iara LourSi. She coordinates an amateur theater group, which consists of volunteering actors aged 62-80 years.
The play was presented successfully on two occasions: during the celebration of the National Day of Tinnitus Awareness (Nov 11th, 2007) in São Paulo and in the Congress of Otorhinolaryngology Foundation (Dec 5th, 2007), in Rio de Janeiro.
Here, we pause to thank and applaud the good will of all those who generously volunteered to help spread tinnitus issues in such a pleasant way.
We were also given with a song called "Rap GAPZ", especially created by Mrs Iara Loursi and Ray Nonato. Here is the letter for you (in Portuguese)!
RAP GAPZ: "THE SOLUTION"
Letter: Iara LourSi e Ray Nonato
O APOIO EFICAZ
É O GAPZ QUE FAZ
SE O ZUMBIDO NO OUVIDO
NÃO QUER TE DEIXAR EM PAZ
OUTRO DIA ACORDEI
COM ABELHA A ME ZUMBIR
PINGUEI MEL, PINGA E AZEITE
MAS NÃO CONSEGUI DORMIR
HÁ BOM TEMPO, EU JÁ PASSO
ACHANDO QUE ESTOU LOUCO
COM O OUVIDO ESTALANDO
CHACOALHANDO FEITO UM CÔCO
QUANDO TAVA NAMORANDO
O ZUMBIDO APARECEU
O CLIMA FOI BAIXANDO
O PARCEIRO ENTRISTECEU
COM O SUSTO DE CONGONHAS
NA SÉ ME JOGUEI NO CHÃO
O ZUMBIDO ERA TÃO ALTO
PARECENDO UM AVIÃO
MADRUGADA, NOITE ALTA
TIC TAC A ME ZOAR
NÃO COCHILO UM INSTANTE
COMO EU VOU TRABALHAR?
O BARULHO FOI CRESCENDO
NUM AGUDO A APITAR
O CÉU TÁ ME RECEBENDO.
SEM DOUTOR PRA ME AJUDAR???
DE FLORAL, REZA, YOGA
A DESPACHO BEIRA-MAR
POUCA COISA JÁ ME RESTA
SÓ JESUS PRA ME CURAR.
The young Brazilian filmmaker Gregorio Graziosi looked for our specific guidance on the composition of the main character of his short film Saltos (Jumping). It portrayed the life of a 17-year-old athlete who practiced diving. During training for a competition, he suddenly loses his hearing and starts to experience tinnitus. Gregorio followed some of our patients and got several testimonies so as to better characterize him. The film "Jumping" won the award for best short film at Mar del Plata Festival (2008).
We inaugurated the Institute Ganz Sanchez on May 11th, 2009, the first Latin American center specialized in tinnitus. It's our "sanctuary", a privileged space to exercise our work of excellence with comfort and convenience for the patient.
It gathers expert professional services and modern equipment to attend patients and to perform research on diagnosis and treatment.
Since the planning, the history of the Institute Ganz Sanchez has been marked by overcoming challenges and the ultimate mission of welcoming the suffering of others, understand it, and offer the best customized treatment strategy. As "each case is unique", we use our logic and intuition to follow the slogan that can be seen in our rooms: “Personalizing strategies, multiplying possibilities”
A multidisciplinary team headed by Tanit Ganz Sanchez, MD, PhD is carefully selected, trained professionals with postgraduation and with appropriate profile for the treatment of patients with tinnitus.
We created the Tinnitus TV as another tool to be able to achieve, in Brazil, an audience of 9 million tinnitus sufferers who have Internet access and 6000 otolaryngologists that can help treat them in the four corners of the country.
The Tinnitus TV has information for the public in the form of lectures, interviews in the best television channels, a few movie scenes and advertisements that addressed tinnitus. Have fun in http://institutoganzsanchez.com.br/tvzumbido_en.html
Some patients find that watching the content of Tinnitus TV before the first visit with us optimized the consultation, whereas other patients preferred to watch Tinnitus TV after consultation to solidify the information received. Choose what is best for you!
The National Campaign to Alert to Tinnitus was a very nice project to be carried out. In 2009 and 2010, to broaden our actions, we traveled for several major cities of Brazil ministering two free lectures in each city: one in the afternoon, directed to the public and one in the evening, directed to healthcare professionals (otolaryngologists, audiologists, general practitioners, neurologists, geriatricians etc).
The objectives of this campaign were: educate everyone about the problem of tinnitus, treatment strategies and the need to customize them for each patient, mobilize the pent-up demand for sufferers in every city and bring the audience closer to the local professionals who can help them.
As part of our social project, participation in conferences of the National Campaign to Alert to Tinnitus was free and generated tons of donations of food and non-perishable products to charity entities in each visited city.
APIDIZ (Association for Interdisciplinary Research and Divulgation of Tinnitus) is a non-profit organization, created to change paradigms, to gather open-minded people and to make ideas possible to facilitate the cure of tinnitus.
MISSION: to form interdisciplinary teams to develop and disseminate scientific research of many aspects of tinnitus.
VISION: to expand the mission of APIDIZ to multiple health professionals, expanding the scope of information and promoting new practices for managing nationwide.
VALUES: commitment to research and disseminate any aspects of tinnitus that promote partial or total remission.
With innovative content and format, the 1st Latin American Tinnitus Webmeeting was the first major project promoted after the creation of APIDIZ (Association for Interdisciplinary Research and Dissemination of Tinnitus), with the support of the Institute Ganz Sanchez.
It was designed to be dynamic in lectures with Brazilian and Latin American specialists, to allowing interaction between guests/virtual audience and knowledge exchange in real time, as well as to providing practical information to improve behaviors in daily practice.
This was addressed to all health professionals, including otolaryngologists, neurologists, clinicians, geriatricians, speech therapists, dentists, physiotherapists and psychologists.
In addition to attend the free event, it was also possible to monitor the speakers and slide presentations in Portuguese and Spanish, with the convenience of watching the broadcast from home, office or any other place. The content was made available to all subscribers for 10 months.
It was a great pleasure to innovate with this event. We had an expectation of reaching 600 people, but we finished the event with 1883 participants from 22 countries attending the modules in the live or recorded version.
The International Tinnitus Seminar (ITS) was created in 1979 in the United States and its 9 previous editions were held in European and American cities. In 2008, in Sweden, we won the candidacy over other candidates to host the largest global expert meeting outside Europe - United States.
We proudly brought this unique opportunity for Brazil, making the 10th edition in the resort Costão do Santinho in Florianopolis, in March 16-19th, 2011. It was an event of excellence and, once again, we innovated: the live event was also broadcast via the web to several countries.
ITS 2011 added many different specialists interested in the diagnosis and treatment of tinnitus (otolaryngology, neurology, geriatrics, psychiatry, speech therapy, physiotherapy, dentistry, psychology, neuroscience etc.). We received guests from Germany, Argentina, Australia, Colombia, Spain, United States, England, Ireland, Italy, New Zealand, Peru, Paraguay and Brazil (Distrito Federal, Bahia, Maranhão, Minas Gerais, Paraná, Rio de Janeiro, Rio Grande do Sul, Santa Catarina and São Paulo).
Several nonprofit institutions of tinnitus supported our event: American Tinnitus Association, European Federation of Associations Tinnitus, Tinnitus Association of Canada, New Zealand Tinnitus and Hyperacusis Network, British Tinnitus Association, Tinnitus SA, Fondazione Ascolta and Vivi and the Tinnitus Research Initiative.
It was an indescribable experience, despite the great work of the whole team! We hope that the coming of both international researchers has helped to motivate other Brazilian professionals to engage in this big cause!
After several years teaching theoretical courses throughout Brazil, we missed "something else". So, we created the first practical course totally targeted to form ENTs and audiologists.
Summary: Always innovating, this is our way! Using the known didactic and synthesis ability to share ideas, we discuss everything that is relevant to the care of tinnitus outpatients. Unlike other courses previously taught by Dr Tanit, this event has practical and active participation of the audience in all classes. For better use of practical content, the course is applied to small classes (30 students per course), very informally and with enough time for exchanging information among the participants. Because this is a team effort, we suggest the participation of ENTs + audiologists to increase the likelihood of implementation of tinnitus centers in other cities.
Contact: (11) 3021-5251 ou [email protected]
Using our 10-year experience in coordinating support groups, we recreated in 2012 the GANZ - National Support Group for people with Tinnitus. In this new phase, an even greater challenge: to reach at least one million of the 28 million Brazilians who have tinnitus.
The main objectives of GANZ are to educate, exchange experiences and convey more optimistic - yet realistic - information for those who suffer from tinnitus. The pioneering GANZ is transmitted everywhere through social media streaming, increasing the scope of the information to the entire national territory. Dr. Tanit Ganz Sanchez coordinates all meetings, which occur in the first Wednesday of each month, from 3pm to 4:30pm at the headquarters of APIDIZ (Association for Interdisciplinary Research and Dissemination of Tinnitus), a nonprofit organization that promotes the GANZ. The meetings can be watched live by http://twitcasting.tv/zumbidonoouvido, which can be downloaded for free on your computer, phone or tablet.
See the whole schedule for 2013 at www.apidiz.org.br
The schedule to attend meetings in person can be made by calling (11) 3021-5251 or by email: [email protected]
AUDITORY PROCESSING – EVALUATION AND TRAINING
Some patients (with or without tinnitus) think that they do not understand well, even having mild or no hearing loss at all. See whether you have such symptoms:
- do you have difficulties in learning and/or to read and write?
- do you have memory difficulty?
- are you easy to distract?
- do you get tired soon after watching lectures?
- are you agitated and/or unquiet?
- do you have difficulties in hearing and paying attention in oisy ambients?
- do you often say “what?”, “hã?” or “can you repeat”?
- do you seem not to hear well?
- do you have a delay to listen and/or understand what was said?
- do you have difficulties in following a conversation with many people?
- do you have difficulties in localizing where the sound come from?
- do you have difficulties in following a sequence of tasks that were ordered?
If so, make an appointment to check your Auditory Processing!
What is Auditory Processing?
It is “what the brain does with what the ears hear”.
What is Auditory Processing Disorder?
It is the disability of using the auditory processing abilities, which causes lack of attention, concentration, understanding and learning, in children, adults or elderly.
How it is evaluated?
A specialized audiologist performs many tests within the acoustic chamber, which are suitable for anyone older than 6 years old with no discomfort.
Later, the professional checks whether the mistakes are within normal limits for each age. How is the treatment?
The auditory abilities which were altered during the evaluation are now trained through specific exercises to the brain. It is usually performed in 8-10 weekly sessions lasting 1 hour each. Sessions should be consistent and challenge the patient.
Auditory Training can help improving symptoms very much in children, adults or elderly.